Parenting a child on the Autism spectrum

Melissa Elges

Melissa Elges

Year after year, as a parent of a child on the Autism spectrum, I find myself celebrating victories and reflecting on the challenges we've encountered. Watching my son transition into a young man prompts me to contemplate how the world will embrace him. As Brody finishes out his first year at Aspire High School, I reflect on his journey with hope that sharing our story with help others that may be on a similar path. I also can’t express enough gratitude to those who have been instrumental along his path.

Brody's Autism/ADHD diagnosis at age 2 marked the beginning of a transformative journey. Despite initial reluctance to accept the reality, the diagnosis opened doors to crucial assistance and services that Brody needed. The journey involved a team of dedicated professionals — occupational therapists, speech pathologists, and applied behavioral analysis (ABA) therapists — who worked with Brody at home. Witnessing his progress, from learning sign language to eventually communicating verbally, was truly gratifying. It also brought a special set of challenges trying to understand my son’s disease and desperately sifting through emotions to get him everything I could for a fair chance.

The elementary school phase presented its own set of challenges, but we were fortunate to encounter teachers and therapists genuinely committed to helping Brody. Navigating the system and accessing resources felt like a full-time job, with dreaded IEP meetings and struggles across academics, social skills, and behavioral issues. Yet, the consistent support from ABA therapists, teachers, family, advocates, and organizations like Moxy Up made a significant difference. It truly takes a village to raise a child on the spectrum and as a parent you should not feel guilty for not having all the answers. Leaning into professionals was a god send for me, as I beat my head into the wall at times, feeling I failed as a mother.

Junior High brought new challenges, typical for anyone moving through adolescence. Brody faced additional behavioral hurdles brought on by puberty and moments of defeat. However, he concluded Junior High on a positive note, receiving an award at the 8th grade graduation, the Herb Chiara Memorial Award for the most improved 8th grade student thanks to the unwavering support from family, teachers, advocates, and therapists.

Entering High School, Brody chose Aspire High School, a decision that proved to be outstanding. The school's environment allows children like Brody to learn at their own pace in a smaller setting conducive to concentration, less overwhelming class sizes, and a smaller environment to navigate. This allows Brody to focus on academics and his teachers are more accessible with less students. Brody is encouraged to participate in community service, fostering social engagement. Once again, the support network, including teachers, therapists, family, and advocates, continues to play a crucial role.

Throughout this journey, the key to our resilience has been the support of others—people who kept showing up. I can remember Brody receiving his first three-wheel bike from Kiwanis to help with balance, Moxy Up provided a place where Brody could receive therapy with an adult present while as a single mom I had to work, countless friends and family members provided a kind ear, and numerous teachers went above and beyond to contribute to his success.

 If you're struggling with the challenges of raising a child on the Spectrum, know that you are seen and I encourage you to seek out those who can support you. We need to continue to come together as a community to not only support youth on the spectrum, but as these youth transition to adults.

I also encourage you to attend Family Support Councils Autism Resource Fair on April 20 from 10 a.m. to 2 p.m. at the CVIC Hall. This event is for families, children, and transitioning adults with developmental disabilities. Discover various programs, services, and resources available in our Community. The DCSO Autism Alert vehicle will also be in attendance where you can register a loved one for the program.


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